Tuesday, May 19, 2015
We were so thankful for Gpa and Ama as they stayed in France for 6 weeks while Samuel and I were in the NICU to help us care for Zeke, Theo, and Jonah.
They played games each night with the boys, they took them to school, went grocery shopping for us, read books to them, put them to bed, and so much else. We are so thankful for their help and their love shown to us and the boys while they were here.
Friday, May 8, 2015
It was discovered that Samuel would need to have a pull through procedure in order to remove the segment of Samuel's large intestine that was not innervated and was not working.
My poor baby following his surgery. He remained on the ventilator through the night.
We were able to go home 5 days after surgery after some training of care things for Samuel. I was thrilled to return home with all of my boys!
My view I spent many hours looking and praying over. And Charlette, one of our favorite nurses.
Although Samuel was still in the NICU, he was allowed to leave the NICU daily for a few hours between his three times a day bowel washouts. I am very thankful that his big brother got to spend some time with him and thankful for my Mama's heart as well.
Beautiful flowers from my husband!
Danny enjoying some special time with Samuel
The amazing view from the hospital.
On the 4th day, they determined that Samuel needed to be moved to a specialist Children's hospital for further testing. I went by ambulance to Grenoble with Samuel while Danny packed up a few things and met me there. We were very thankful Danny's Dad and Stepmom were here in order to start caring for the boys.
After further testing, they determined Samuel had Hirschsprung's disease. They scheduled a biopsy of his large intestine to ensure that was the correct diagnosis while we awaiting the next plan. I cried a lot, attempted to understand what the nurses and doctors were saying in French, learning lots of new French vocabulary, and sat next to Samuel's bed
The Children's Hospital in Grenoble
I had the chance to stay at the Ronald McDonald House (Maison des Parents). This was my interesting walk each time I went there.
My beautiful room but was quite lonely without Samuel and the rest of the family.